Study Enrollment

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Clinical Trial

PNH Registry

The PNH Registry is a Registry with enrollment of patients that have been diagnosed with PNH or a portion of blood cells with PHN characteristics, regardless of treatment. Additionally, it will collect information designed to capture safety and effectivness data for Soliris or Ultomiris, and to track the progression and management of patients with PNH.

Eligibility Criteria

  • all patients with a diagnosis of PNH or a detected PNH clone, whether or not they are treated with Soliris. 18 years and older

Contact Information

    Leigh Wells

    (706) 721-2171